Nolan

Happy Fathers Day to all you wonderful dads out there......Nolans eyes are again stable and as far as going to Boston that is on hold for right now. Nolan has been doing very well, we have spent alot of time inside, we have alot of restrictions with the methotrexate he is on. As many of you know we have experienced another trial in our lives....On May 8th i had a seizure while driving and totalled my vehicle, Jc and the kids were in the vehicle but no one was hurt. We are very fortunate that things ended up the way they did, although for me the recovery has been a tough road i have had an outpouring of support which really helps. So thank you all for all you do for our family........
Love,
Sara

Update on Nolan

Hello everyone...its been awhile so thought i should sit down and write a little bit...
Nolan's eyes are stabile, no changes so we are very thankful for that. After speaking to a couple of his doctors it has been recommended that we take Nolan back to Boston for Dr. Foster to take another look at him since its been a year. So it is all in the beginning and planning stages but hopefully we can take him in June sometime. Nolan has had some struggles and missed some school but he seems to be holding his grades pretty well. Please continue to keep Nolan in your prayers and this upcoming trip.

All my love,
Sara


p.s. Thank you for supporting me through my eye disease. From, Nolan

Happy Spring...

We had Nolan's check up on friday and his disease in his eyes are still quiet and stabile. One doctor says to reduce the chemo and the other says to keep it since its doing its job and he has to be steroid free and quiet in both eyes for 2 years in order for his disease to go away. So now just waiting to have both dr's talk, never a dull moment. Nolan has had his ups and downs of being sick alot. We did manage to take a trip to minnesota for my grandma's 90th birthday, that was alot of fun and very busy. The kids are on spring break this week and nolan has had a fever a few days and now today it sounds like a cold again. We actually got a dusting of snow lastnight, probably our last blast of winter. Wishing you all a happy spring and thank you again for all your emails, we truly appreciate your love and concern for nolan.

Love,
Sara

UPDATE...

Just a quick update on nolan, he eyes have been stabile for 2 1/2 months now. We still do chemo on fridays and his immune system seems to be pretty compromised, he just had strep for 9 days but now is all better. We did get some info from the doctors and they will be taking him out of baseball for the season due to the sun exposure and being on chemo and the trauma that baseball could cause. Nolan has very good attitude about it and is ok with this, we will try and get him guitar lessons finally and see if he can play that while his outdoor activities need to be cut down.
And of course Nolan and Alix are so very excited to be big brothers and sisters, Nolan has to rub my tummy all the time and talk with the baby, it is so sweet.

Love Always,
Sara

Happy New Year.........we have had a very busy holiday season but we were so fortunate to go over to a dear friends house and have a wonderful dinner, sing christmas caroles, and open presents. I started going to a new church in November of 06 and as it would be met up with this wonderful lady and she has mentored me in so many ways i can't even explain. Here she is....meet an absolutely adoring lady...LENANN. The kids just experienced a very neet evening with her, she plays the piano and showed both of them a little bit. We can't thank her enough for her graciousness and love she has provided us, i hope and pray we all can have mentors in our life like her. Lenann organized nolans fundraiser at our church which was a burrito sale and was such a great success. Thank you Lenann for everything you have done and continue to do for the kids and i, i know you will be blessed.

We hope you all have had a wonderful holiday season. Wishing you all the best in 2009!!!

Sara, Nolan, and Alix

p.s. and also meet Barney, he couldn't be left out of the picture, he is photogenic too....