Here we go again....

Well...wow its been a busy month...The baby has had RSV and everyone has had colds and then also all this with Nolan...So the news today is that Nolan's eyes still have not improved, one doctor wants him back on mtx (chemotherapy) and the specialist in Boston believes that when he was taken off mtx his disease reacted, that there is something else out there for Nolan to take that will keep his eyes quiet while taking it and also when he goes off it keep him quiet too, Dr. Foster has also asked to re-evaluate Nolan himself in Boston again. My mind was spinning lastnight and trying to figure out different fundraisers again for Nolan so we could get him out to the specialist. We have great confidence in the dr's here but it has been 2 years since nolan has been to boston, we would really like to get him back there as that is where Nolan feels most comfortable. Along with all this that happened yesterday we also found out that Nolan needs glasses...this is due to other issues which are not his disease...I know we are not given more than we can handle but the plate feels full. We now have to start on another 2 year journey of meds with Nolan and if he goes back on mtx we have quite a few restrictions and living in new mexico with sun most of the time that will be hard but we did it before we can do it again. Please keep Nolan and our family and doctors in your prayers. I wish Nolan did not have to go through this, feels like constant disappointment in his life, although he is very excited about getting glasses. Feel free to email me with any ideas or concerns or anything...
all my love,
Sara

Nolan

Sorry for the mishap...Nolan's disease has returned and we are on yet another road. We go back to the dr. on March 16th after a two week period of steroid drops 6 x a day. Among the disease there have also been a couple other things that have popped up so he is undergoing testing for those. Please keep him in your thoughts and prayers as he now has more to do so we can kill the beast, if thats possible.
Love,
Sara