We are so Blessed...

Nolan received good news this time around, his eyes look pretty good, his left eye just has one little spot (infiltrate) at this time and his right eye is clear. So thankful for the news as we were thinking we might have to have another surgery but this visit went well. Now we will wait for the next 6 weeks to pass and hope for the rest to heal and the waiting game continues.
Nolan continues on chemotherapy every friday morning, he is doing really well with that and is not afraid of the needles anymore, whew...
Nolan and Alix are very excited for Christmas break, we don't have much planned but to take care of PAPA who is undergoing surgery tomorrow on his rotator cuff on his right shoulder. Of course Nolan feels he needs to be at the hospital for his PAPA and then help him out at home. We are also awaiting news as my dad has also had a prostate infection for 8 weeks and his blood level is still high after being on antibiotics for so long. Our family has been through alot this year but we are remaining strong.
Alix is now the singer in the family so she has her first program tomorrow night if it doesn't snow again, we sure have had some wintery weather.
Alix and Nolan are really struggling emotionally right now we having very trying days but we try and remain focused on god and what he brings us, my heart breaks and there is not alot of sleep but i know our faith with get all of us through. Thank you all for your continuued prayers, thoughts, donations, we greatly appreciate your thoughtfulness.
In his love,
Sara

Merry Christmas to all of you...

The good news...

We have finally received the news from the doctors...Nolan will continue on the path we started on and his x-ray came back pretty good, we are definetly so thankful that we are staying put here and continuuing with the original plan. Nolan has come a long way, his injections on fridays are going extremely well now, I am so proud of him and the accomplishments he has made thus far, not only with his medical trials but in school. I met with all his teachers this week and they just commented on nolan and how excellent of a student he is and how he has a big heart for others, his quality of work is remarkable they said. Sooo with all this we are so happy and taking one day at a time his next appt with Dr. Chiu is Dec. 12th. We hope you all have a wonderful thanksgiving and treasure this time with your families.

All my love,
Sara

We are singing PRAISES today...

Great news today...Nolan had his blood test and the hep lock placed, with the help of 5 people but we won't go into all that, the fact is is that it is done and all the testing is complete FINALLY.
Dr. Chiu found one spot in his left eye that he believes is some staining from bleeding so the pics will be sent to Dr. Foster and we will await his decision. Nolan is exhausted but is ready for his night, thank you all for your prayers and thoughts, they are greatly appreciated and his sister is so happy for him cuz he finally did the testing. woohoo. Wishing you all the best and be safe for those of you trick or treating tonight, we hope no ghosts or goblins get you.


Love,
Sara

The final decision...

Well today was another long day but we have some answers...Nolan will undergo next friday Oct. 31st some blood drawing and at that time they will keep the IV in him and send him out with a hep lock and we will go right to dr. chius office to have the angio done, Dr. Foster was unable to see anything without the angio being done. Nolan has had a cold and has seem to relapsed with it and now he has IMPETIGO, so we will now be on antibiotics to treat that. As far as the chemo we will stay on our regular dose and wait until this testing is done and then dr. foster will evaluate his treatment.

Love,
Sara

Pumpkin Patch

We spent some time going to the pumpkin patch yesterday and it was a very beautiful day, we were able to take our little cousin Angelina with whom we all just adore but her and Alix have a very special connection, Alix loves to take care of her and play with her. Nolan went back on Friday to try and re-do the test and still was very nervous and was unable to do it. At this point, Dr. Chiu will send the photos he has to the specialist in Boston and we will wait to see what happens when he see's them. A very dear friend who is a clinical psychologist has taken nolan under his wings and nolan has gone through some in depth counseling this weekend and will continue for a couple weeks as so many things in his life are challenging for him right now. So we are so thankful for this friend to step up and help. Nolan goes to the university on wednesday and then back to Dr. Chiu on the 31st so i will keep you updated as we get news. I hope everyones fall is going well and we think about you all often.

Love,

Sara

NO Test today...

Just wanted to tell everyone that unfortunately after 31/2 hours of being at the lab Nolan had a very hard time and refused his test. He is having a very hard time so many things in his life are happening, we will know tomorrow when they will reschedule it for. Please just keep him in your thoughts and prayers as he is struggling right now...i will post when we get the test done, we are hoping friday will be the day, the way the nurse sounded tonight when we left. Thank you all for all your phone calls, posts, and emails as we are still going through this trial in our lives, it gives us great hope.

Sara

Nolans Concert

Nolan and his first orchestra concert. I wish you all could of heard this concert, this was the beginner class and boy did they do incredible, and to hear Nolan play in front of people for the first time was breathtaking, i am so very proud of him and how fast he learned music and to play his violin. and especially special because Nolans was sick and missed alot of school and right when we came home he had spiked a high fever. Way to go Nolan...you did awesome. As of today we are still here in New Mexico, Nolan will undergo a test on Wednesday to see if he has bleeding or swelling behind the eye and then the doctors will decide at that point what our next step will be. After a very long week and a half of getting doctors together and meeting with them we all finally arrived at this decision. Nolan is very nervous but he is covered in prayer that we will take it as it comes. ok, now Nolan would like to say something.

One proud superheros mom,

Sara

Hi my ochestra concernt was fantastic, I had so much fun playing in the concernt. Even though I was sick i'm one strong boy,this boy will do anything no mattier if i'm really sick I will preform at my concerts for a good grade. I hope my test go's really well.And my mom and my sis support me a lot ,now it's my turn to support them as well as they are doing for me.

SUPERHERO,

NOLAN