Nolan

Happy Fathers Day to all you wonderful dads out there......Nolans eyes are again stable and as far as going to Boston that is on hold for right now. Nolan has been doing very well, we have spent alot of time inside, we have alot of restrictions with the methotrexate he is on. As many of you know we have experienced another trial in our lives....On May 8th i had a seizure while driving and totalled my vehicle, Jc and the kids were in the vehicle but no one was hurt. We are very fortunate that things ended up the way they did, although for me the recovery has been a tough road i have had an outpouring of support which really helps. So thank you all for all you do for our family........
Love,
Sara

Update on Nolan

Hello everyone...its been awhile so thought i should sit down and write a little bit...
Nolan's eyes are stabile, no changes so we are very thankful for that. After speaking to a couple of his doctors it has been recommended that we take Nolan back to Boston for Dr. Foster to take another look at him since its been a year. So it is all in the beginning and planning stages but hopefully we can take him in June sometime. Nolan has had some struggles and missed some school but he seems to be holding his grades pretty well. Please continue to keep Nolan in your prayers and this upcoming trip.

All my love,
Sara


p.s. Thank you for supporting me through my eye disease. From, Nolan

Happy Spring...

We had Nolan's check up on friday and his disease in his eyes are still quiet and stabile. One doctor says to reduce the chemo and the other says to keep it since its doing its job and he has to be steroid free and quiet in both eyes for 2 years in order for his disease to go away. So now just waiting to have both dr's talk, never a dull moment. Nolan has had his ups and downs of being sick alot. We did manage to take a trip to minnesota for my grandma's 90th birthday, that was alot of fun and very busy. The kids are on spring break this week and nolan has had a fever a few days and now today it sounds like a cold again. We actually got a dusting of snow lastnight, probably our last blast of winter. Wishing you all a happy spring and thank you again for all your emails, we truly appreciate your love and concern for nolan.

Love,
Sara

UPDATE...

Just a quick update on nolan, he eyes have been stabile for 2 1/2 months now. We still do chemo on fridays and his immune system seems to be pretty compromised, he just had strep for 9 days but now is all better. We did get some info from the doctors and they will be taking him out of baseball for the season due to the sun exposure and being on chemo and the trauma that baseball could cause. Nolan has very good attitude about it and is ok with this, we will try and get him guitar lessons finally and see if he can play that while his outdoor activities need to be cut down.
And of course Nolan and Alix are so very excited to be big brothers and sisters, Nolan has to rub my tummy all the time and talk with the baby, it is so sweet.

Love Always,
Sara

Happy New Year.........we have had a very busy holiday season but we were so fortunate to go over to a dear friends house and have a wonderful dinner, sing christmas caroles, and open presents. I started going to a new church in November of 06 and as it would be met up with this wonderful lady and she has mentored me in so many ways i can't even explain. Here she is....meet an absolutely adoring lady...LENANN. The kids just experienced a very neet evening with her, she plays the piano and showed both of them a little bit. We can't thank her enough for her graciousness and love she has provided us, i hope and pray we all can have mentors in our life like her. Lenann organized nolans fundraiser at our church which was a burrito sale and was such a great success. Thank you Lenann for everything you have done and continue to do for the kids and i, i know you will be blessed.

We hope you all have had a wonderful holiday season. Wishing you all the best in 2009!!!

Sara, Nolan, and Alix

p.s. and also meet Barney, he couldn't be left out of the picture, he is photogenic too....

We are so Blessed...

Nolan received good news this time around, his eyes look pretty good, his left eye just has one little spot (infiltrate) at this time and his right eye is clear. So thankful for the news as we were thinking we might have to have another surgery but this visit went well. Now we will wait for the next 6 weeks to pass and hope for the rest to heal and the waiting game continues.
Nolan continues on chemotherapy every friday morning, he is doing really well with that and is not afraid of the needles anymore, whew...
Nolan and Alix are very excited for Christmas break, we don't have much planned but to take care of PAPA who is undergoing surgery tomorrow on his rotator cuff on his right shoulder. Of course Nolan feels he needs to be at the hospital for his PAPA and then help him out at home. We are also awaiting news as my dad has also had a prostate infection for 8 weeks and his blood level is still high after being on antibiotics for so long. Our family has been through alot this year but we are remaining strong.
Alix is now the singer in the family so she has her first program tomorrow night if it doesn't snow again, we sure have had some wintery weather.
Alix and Nolan are really struggling emotionally right now we having very trying days but we try and remain focused on god and what he brings us, my heart breaks and there is not alot of sleep but i know our faith with get all of us through. Thank you all for your continuued prayers, thoughts, donations, we greatly appreciate your thoughtfulness.
In his love,
Sara

Merry Christmas to all of you...

The good news...

We have finally received the news from the doctors...Nolan will continue on the path we started on and his x-ray came back pretty good, we are definetly so thankful that we are staying put here and continuuing with the original plan. Nolan has come a long way, his injections on fridays are going extremely well now, I am so proud of him and the accomplishments he has made thus far, not only with his medical trials but in school. I met with all his teachers this week and they just commented on nolan and how excellent of a student he is and how he has a big heart for others, his quality of work is remarkable they said. Sooo with all this we are so happy and taking one day at a time his next appt with Dr. Chiu is Dec. 12th. We hope you all have a wonderful thanksgiving and treasure this time with your families.

All my love,
Sara